Seeing Ezra by Kerry Cohen

Seeing Ezra

by Kerry Cohen

Seeing Ezra is the soulful, beautifully written memoir of a mother's fierce love for her autistic son, and a poignant examination of what it means to be normal." When Kerry Cohen's son Ezra turns one, a babysitter suggests he may be different," setting her family on a path in which autism dominates their world. As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism. It soon becomes clear that more is at stake than just Ezra's well-being Cohen and her marriage are suffering as well. Ezra's differentness, and the strain of pursuing varied therapies, takes a toll on the family,Cohen's husband grows depressed and she pursues an affair,all as she tries to help others recognize and embrace Ezra's uniqueness rather than force him to behave outside his comfort level. It isn't until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy.Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother's struggle to protect her son from a system that seeks to compartmentalize and fix" him, and of her journey toward accepting and valuing him for who he is,just as he is.

Reviewed by Jane on

3 of 5 stars

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For everyone who has ever misunderstood me and/or judged me as an autistic, I want to throw this book at them. Whilst Cohen is, indeed, whiny in many instances throughout this book, the never-ending battle she faces in trying to convince strangers—and even friends—nothing is wrong with her child caused me to see myself in her. When I say, "I'm autistic," I'm always handed back some lecture on how I need not use identity-first language, or how I don't "seem" autistic.

It's really hard to be an autistic. So many times, I wished I could just tell her some things that go on in my own head as an autistic—like how easier it is, sometimes, to use as little verbalisation as possible, or how soothing being in my own space, behind my closed bedroom door, can be.

"Seeing Ezra" isn't perfect; it's charming in its own way, and I want people around me who seem to be craving to understand me to read it—only so they can [hopefully] look at an allistic mother's viewpoint with her autistic child. I struggle to properly articulate what life as an autistic person is like. I've been criticized by numerous parents, and people in general, because I am "able" to have a conversation with someone online—because I have a blog and can write and dance; because I can do things their child(ren) may "never" be able to do.

The world is not kind to autistics; we're treated as if we're children of the Devil—monsters, serial killers, pedophiles—and should be given the death penalty. Many people think we should be put on our own island, away from civilization, and "fixed" so we cannot reproduce. "Experts" look at us as if we are abnormal beings—monkeys to be studied and experimented on—and all the while, we are not permitted to be angry. Autistics are judged for being themselves—for speaking out and fighting for their rights; we're judged so, so harshly by this world when we don't fit perfectly into someone's social protocols or check boxes.

Maybe Cohen's book could help people to understand that...maybe.

I rated it 3 stars because, whilst it's amazing, it's not perfect. There are flaws, and I disagree, as an autistic myself, with much of what she says—but it's not perfect. There are grammatical and punctuation errors, and I wished so often she'd have just used "and" in place of a comma, because the diction would have been more understandable. As I read further into the book, these errors became more frequent, as if editors grew lazy. At one point, a sentence lacks a period—and you can tell, because there is a capital "T" for "The". This book would have been a much easier read in the event that it was written in a sans-serif font.

This book isn't perfect.

It doesn't need to be perfect.

Through this book, Cohen restored my faith in humanity—albeit slightly—and articulated well so many of the things I have been unable to articulate properly—because I'm autistic, because there are some things I cannot adequately wrap my brain around to understand, because I am not flawless.

I tend to avoid autistic literature and movies. I enter with the expectation to exit feeling utterly insulted and dirty. My heart broke when frustrations were taken out on Ezra; I cried with relief when I read about Ezra's dentist—he wasn't strapped down, unable to move, and/or frightened for his life like I had been for my first dental visit. His parents didn't take away his special interests or the things that brought him comfort; they didn't punish him for not eating—they attempted to seek other methods—because he wasn't doing anything wrong. Creating, developing and maintaining a relationship with an autistic person requires patience, acceptance and an open mind.

If you liked this book, I recommend the movie "Snow Cake". It has an accurate, flawless depiction of an autistic woman.

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Reading updates

  • Started reading
  • 20 February, 2016: Finished reading
  • 20 February, 2016: Reviewed