nannah
Written on Jan 19, 2016
I wish everyone (and especially doctors) knew the basic information from this book. It's been nearly two decades since its publication, and doctors still aren't even close to being sort of informed on FMS or CMP. Some don't even believe they're real conditions.
I've been "officially diagnosed" with fibromyalgia for about two years now and since then, all I've got from medical professionals has been misunderstandings, frustration, the bare minimum of medications, and physical therapy that have harmed me more than helped. I finally decided to educate myself on my own condition, and I'm so, so glad that this was the first book I picked up.
It demystified so many aspects of FMS (and CMP, which I'm 100% sure is something I also have, but most--including my--doctors just lump together because of inadequate knowledge) that were unclear to me and gave me resources that made me feel empowered instead of always helpless.
What makes this book so great is that the author has fibromyalgia, and she speaks from a point of view that's so relatable and understanding. It doesn't sound distant, even when she's talking about extremely scientific things with long terms that could be text book material.
If I had to make one critique (because this book was, is, and will be helpful for anyone with these conditions), it would be that it is evident the author is pretty comfortable regarding money. Many solutions for delegating home tasks and chores, etc. is to hire someone, and if money is an issue, simply hire a teen who will work for lower rates. This was repeated so many times (hire someone) that it became more than an annoyance, because there are many people who could never be able to hire someone to help. It was also assumed that people could just talk to their bosses about needing help with their illnesses (without getting fired--or as if they already had a stable job--or as if they weren't people job searching, people who would probably need to start at the bottom with no way to ask for better accommodations if they wanted to be hired).
In any case, the book was so educational and the resources provided make it invaluable.