For Magda Newman, normal was a goal - she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel’s severe Treacher Collins syndrome - a craniofacial condition - meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?
In this moving memoir, Newman, with the help of her son, tells the story of raising Nathaniel, from the shock she and her husband faced when he was born, to the inspiration of Nathaniel’s own strength and quirky humor. All this while also facing both non-Hodgkin’s and Hodgkin’s lymphoma diagnoses of her own. This uplifting story of a family tackling complex and terrifying circumstances with love and resilience is a true testament to Magda and her family, and to families everywhere who quietly but courageously persist.
- ISBN13 9780358410942
- Publish Date 1 February 2021 (first published 1 February 2020)
- Publish Status Active
- Out of Print 15 November 2021
- Publish Country US
- Imprint Houghton Mifflin Harcourt Publishing Company
- Format Paperback
- Pages 256
- Language English