Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.
Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.
- ISBN10 1909762334
- ISBN13 9781909762336
- Publish Date 11 April 2016
- Publish Status Active
- Publish Country GB
- Imprint Jacaranda Books Art Music Ltd
- Format Paperback (UK Trade)
- Pages 292
- Language English